Crumlin woman's epilepsy charity nominated for awards

Crumlin woman's epilepsy charity nominated for awards

Epilepsy Sucks UK is a charity that provides anti-suffocation pillows for epilepsy sufferers and one of its founders lives and runs the charity from Crumlin. Pictured is Sallieann Gould at home in Crumlin. (3615365)

Ben Stephens from Crumlin who suffers from epilepsy (3624289)

Ben Stephens from Crumlin who suffers from epilepsy (3624293)

First published in News

AN EPILEPSY charity co-run by a Crumlin woman has been nominated for a clutch of awards for a second consecutive year.

Sallieann Gould, who lives in Hillside, is one half of the Epilepsy Sucks UK team.

The charity is entirely run on the internet and provides anti-suffocation pillows for epilepsy patients and advice to parents.

Now the charity has been nominated for the Shaping the Future award and the Supporting the Community award by Young Epilepsy.

The awards will be held in London in March.

Ms Gould has also been nominated for the Supporting the Community individual award.

Since 2010 the charity has provided more than 600 of the pillows, which cost £45 each, to people across the UK.

But the charity needs to raise £2,000 every month to keep afloat.

Ms Gould is a full-time carer to her son, Ben, 21, who has Lennox–Gastaut syndrome, a severe form of epilepsy.

As part of his condition he can suffer hundreds of seizures a night.

She is also mum to two daughters, Janine, 17, and Hermione, nine.

Epilepsy Sucks UK is run by Ms Gould and Vicki Evans, who lives in Wrexham.

They have only met six times because of their busy lives, but talk online and are active users of social media.

Last year Epilepsy Sucks UK and Ms Gould won awards at Young Epilepsy’s awards ceremony at City Hall in London.

Ms Gould took the prize for Young Epilepsy’s Champion over the age of 26 for the “tireless support she gives to parents of children with epilepsy”.

The charity was also named Young Epilepsy’s Champion Organisation.

For more information on Epilepsy Sucks UK visit their Twitter page @EpilepsySucksUK, or their website,


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