THE family of a three-year-old boy will be holding events for this year's national Williams Syndrome awareness weekend.
Harrison Evans from Newbridge, who is also known as Harri, was diagnosed with the rare condition when he was a one-year-old.
Williams Syndrome affects one in 18,000 people in the UK and it means he has developmental difficulties, a heart condition and various other medical, sensory and sociability issues.
There will be a number of events taking place this weekend to raise awareness of Williams Syndrome including a non-school uniform day and special assembly on Friday (May 19) at Harrison's school, Tynewydd Primary in Newbridge.
This will be followed by an afternoon tea on May 20 at the Newbridge Memo from 1.30pm. Then on Sunday May 21, Harrison will be joined by his four-and-a-half month old brother Finley and the family will lead a walk for Williams Syndrome around the grounds of Tredegar house in Newport.
His mother Sarah Bennett-Evans said: "We want to raise awareness and raise funds for the Williams Syndrome Foundation to support with families like us with the syndrome and to fund research into the condition. Harri loves people and socialising so he'll love the activities."
She added: "He didn't start walking until a year ago and so the walk will be challenge and because of his condition his legs get tired very quickly."
To sponsor Harrison visit justgiving.com/fundraising/Sarah-Bennett-Evans1