I would just like to express my respect to beautiful amber's parents.I've followed this story for a long time and as any mother / father would know when you have a child its a life long responsibility for you to raise and protect no matter what bridges you come to.As stated by her parents 'Amber' does have a good quality of life and i dont think any health professional should have the say over her future care....(if you were GoD then you wouldn't be here!).I really hope from my family to yours this is something you fight all the way for little Amber can not do that herself! Stay strong for her at this difficult time...You need to Campaign,Campaign,Ca
mpaign for this...As if her struggle hasn't been exhausting enough for your family,now you have this to deal with...My heart goes out to all 3 of you. xxxxxxxxxx

I will give my support all the way.
As knowing the family myself, I have seen how much of a devoted family they are, and I fully agree Amber 'does have a good quality of life'.
I respect this family very much, they work very hard, they are such loving parents and Amber is so adorable.
I send all my love to this loving family, my thoughts are with them all at all times.
xxxxxxxxx

I would support Ambers parents in their decision. They obviously give super care to Amber - giving her a safe and happy environment. She is their flesh and blood and loved as any child would be.

What am I about to say it going to sound really nasty!

I do not mean any dis-respect for little Amber nor the parents.

This is no way for a child to live like this. Please just let your child go in peace with dignity!! The doctor won’t just say oh we can’t be bothered to look after this patient let’s shut off the machines. The doctors have realized that she has no life.

I know you be will under terrible grief but let your daughter go…

Rachael wrote:
What am I about to say it going to sound really nasty! I do not mean any dis-respect for little Amber nor the parents. This is no way for a child to live like this. Please just let your child go in peace with dignity!! The doctor won’t just say oh we can’t be bothered to look after this patient let’s shut off the machines. The doctors have realized that she has no life. I know you be will under terrible grief but let your daughter go…

Are you a parent yourself, none of us know what the parents are going through we can only imagine.
I am a great believer in life is life regardless of what is happening.I wish Amber and her family all the luck in the world.

come on now how can anyone have quality of life when they cannot speak, walk,eat, drink or even move and have no real awareness of surroundings, when they have constant seizures and the muscles in the body contract so violently during a seizure that they break bones. Is that quality? Ambers parents have fought admirably for her but now is the time to say no more x

As this brave family said on the Welsh news last night, the doctors only see a small part of Amber's life, ie when she needs treatment. Best of luck to the family, I hope the courts will have the sense not to break up such a loving unit unnecessarily.

Amber can communicate with her parents, Amber can enjoy life, she can recognise her surroundings. Noone has the right to take this away from her. Noone should be playing God.

Those people who support the Decision of the doctors, let me ask you one thing. Would you agree if it were YOUR child in question?

i know the family and i also know the aunty very well, amber is a dear little girl who has overcome every hurdle placed in her way,fighting through to the end.

amber is dearly loved and given everything possible to enhance and prolong her life.her parents would move hell and high water for her and she has a great quality of life which in 6 years has has been the reason why she has astounded everybody with her continued battle against a disease which should have claimed her life not long after her 1st birthday according to these doctors who now want to end her life.

i support nick, les and all the family in their continued fight for ambers life.

Welshlady wrote:
Amber can communicate with her parents, Amber can enjoy life, she can recognise her surroundings. Noone has the right to take this away from her. Noone should be playing God.

Those people who support the Decision of the doctors, let me ask you one thing. Would you agree if it were YOUR child in question?

The doctors are not taking her away. They are KEEPING her here.

If no one was allowed to play god, then turn off the machines and see what happens.

The doctors ARE playing god. They are trained to do so, do so every day, and if they weren't playng god, many of us would not be here today.

So be careful what you wish for. You might just get it.

...and readers are also being urged to post messages of support on our website

C'mon Argus, I know this is an emotive issue for the parents, family and close friends, but I thought you created this forum for individual opinion and comment, not for us to be told what we should write.

Many of our grandfathers fought a war to preserve such values.

As already mentioned, I know Leslie, Nick and families, Amber is a very alert beautiful girl and as seeing her for myself she is generally a happy little girl, they are a devoted loving family and will do all it takes to keep hold of little Amber as long as possible,as parents we would.

When I've seen Amber she is always smiling.
Good luck to them all and we are all on the families side here.

I will give my support all the way. I don’t think anyone who doesn’t have children, should comment on just "giving up". Yes Amber may not have the "normal" lifestyle most children have, but she is being showered with love, attention and help. Her family have alot on their plate, I am sure they don’t need another battle with the courts on their hands.
Fight all the way, you’ll have alot of support behind you! Good luck xx

Who the hell has got the right to take a little girls life away from her, she is loved by her family and friends and even by people like me that dont know who, but can see what a fighter she is. I would like to wish amber and her family all the best and you have my support.

In the end comon sense has to prevail. Artificially keeping this poor girl alive is not in her interests.

It is a very sad case and I am sure when ever she dies it is going to be very hard for her parents.

The doctors have all unanimously stated that it is no longer sensible to try to keep her alive.

Sadely I think it is time for her parents to let her go.

I give my support all the way.

Disgusting!! Disgusting is the word that comes to mind when i read the story yesterday. As a mum who has LOST a severly disabled daughter, a child who was as you say 'unable to see or unaware of surroundings. A child who suffer's from epilepsy.' But a child who CAN feel their parent's presence, that can feel the love the world has for them. NO person should be allowed to decide the fate of any person's life. Every single day since loosing my Daughter (at the Heath hospital) i have questioned myself on whether i made the right decision, i was advised by ONE single consultant which choice i should make as to my Daughter's future. No other advice was offered, and now, reading this article about poor Amber and her family i find myself wondering, maybe the NHS do just see this person taking up their time, their money, their space. But that's what they are there for, to care for babies, children, adults. There are people in this world, being kept alive for decades on life suppost machines, where doctors & family don't even know if the person will ever wake up, and what permanent damage they will have if they do. Yet here, we have a child, a young beautiful child, who has been brave and fought all her life, and for some reason, somebody somewhere is going to sit in a room and decide whether they are going to provide any further medical help. Never should the decision be taken away from Amber's parent's, they braught her into this world and if anyone should be asked to make the heartbreaking decision of when Amber should leave, it should be her parent's. The NHS don't look after Amber, they haven't given up years of their life to give to this special child. They don't see her everyday, they don't see her happy times, they don't see the love and continuous support her family and friend's provide. Maybe the family of Amber would have decided this is the last time they wanted to see their precious Daughter in hospital, but to be TOLD by someone else their child cannot recieve further treatment, how exactly do you think they will cope in the future. Living every day on edge, scared, heartbroken, knowing the next time their ONLY child becomes ill, they will have to sit at home and watch her slip away. Knowing SOMEONE out there, not NATURE, not them, just SOMEONE has decided this is how it has to be. Ridiculous. Every life deserves the right to continue. I wish Amber and all her family the very best of luck in health and happiness. God bless you Amber x

Any one of us who are parents would thank our lucky stars that it is not us facing this terrible situation. However, the primary concern has to be that of the child. I do not believe it is in her interests to be actively treated. She should be kept comfortable and have other fundamental needs tended to but no more.

haykey wrote:
Disgusting!! Disgusting is the word that comes to mind when i read the story yesterday. As a mum who has LOST a severly disabled daughter, a child who was as you say 'unable to see or unaware of surroundings. A child who suffer's from epilepsy.' But a child who CAN feel their parent's presence, that can feel the love the world has for them. NO person should be allowed to decide the fate of any person's life. Every single day since loosing my Daughter (at the Heath hospital) i have questioned myself on whether i made the right decision, i was advised by ONE single consultant which choice i should make as to my Daughter's future. No other advice was offered, and now, reading this article about poor Amber and her family i find myself wondering, maybe the NHS do just see this person taking up their time, their money, their space. But that's what they are there for, to care for babies, children, adults. There are people in this world, being kept alive for decades on life suppost machines, where doctors & family don't even know if the person will ever wake up, and what permanent damage they will have if they do. Yet here, we have a child, a young beautiful child, who has been brave and fought all her life, and for some reason, somebody somewhere is going to sit in a room and decide whether they are going to provide any further medical help. Never should the decision be taken away from Amber's parent's, they braught her into this world and if anyone should be asked to make the heartbreaking decision of when Amber should leave, it should be her parent's. The NHS don't look after Amber, they haven't given up years of their life to give to this special child. They don't see her everyday, they don't see her happy times, they don't see the love and continuous support her family and friend's provide. Maybe the family of Amber would have decided this is the last time they wanted to see their precious Daughter in hospital, but to be TOLD by someone else their child cannot recieve further treatment, how exactly do you think they will cope in the future. Living every day on edge, scared, heartbroken, knowing the next time their ONLY child becomes ill, they will have to sit at home and watch her slip away. Knowing SOMEONE out there, not NATURE, not them, just SOMEONE has decided this is how it has to be. Ridiculous. Every life deserves the right to continue. I wish Amber and all her family the very best of luck in health and happiness. God bless you Amber x

At the end you say that every life deserves to continue but we have to think about quality and not just existence. This sort of situation is not easy for the healthcare staff and they do not take the decisions lightly.

quote

Lily wrote:

haykey wrote: Disgusting!! Disgusting is the word that comes to mind when i read the story yesterday. As a mum who has LOST a severly disabled daughter, a child who was as you say 'unable to see or unaware of surroundings. A child who suffer's from epilepsy.' But a child who CAN feel their parent's presence, that can feel the love the world has for them. NO person should be allowed to decide the fate of any person's life. Every single day since loosing my Daughter (at the Heath hospital) i have questioned myself on whether i made the right decision, i was advised by ONE single consultant which choice i should make as to my Daughter's future. No other advice was offered, and now, reading this article about poor Amber and her family i find myself wondering, maybe the NHS do just see this person taking up their time, their money, their space. But that's what they are there for, to care for babies, children, adults. There are people in this world, being kept alive for decades on life suppost machines, where doctors & family don't even know if the person will ever wake up, and what permanent damage they will have if they do. Yet here, we have a child, a young beautiful child, who has been brave and fought all her life, and for some reason, somebody somewhere is going to sit in a room and decide whether they are going to provide any further medical help. Never should the decision be taken away from Amber's parent's, they braught her into this world and if anyone should be asked to make the heartbreaking decision of when Amber should leave, it should be her parent's. The NHS don't look after Amber, they haven't given up years of their life to give to this special child. They don't see her everyday, they don't see her happy times, they don't see the love and continuous support her family and friend's provide. Maybe the family of Amber would have decided this is the last time they wanted to see their precious Daughter in hospital, but to be TOLD by someone else their child cannot recieve further treatment, how exactly do you think they will cope in the future. Living every day on edge, scared, heartbroken, knowing the next time their ONLY child becomes ill, they will have to sit at home and watch her slip away. Knowing SOMEONE out there, not NATURE, not them, just SOMEONE has decided this is how it has to be. Ridiculous. Every life deserves the right to continue. I wish Amber and all her family the very best of luck in health and happiness. God bless you Amber x

At the end you say that every life deserves to continue but we have to think about quality and not just existence. This sort of situation is not easy for the healthcare staff and they do not take the decisions lightly.

quote

Yes you do have to think about quality. This child probably has better quality of life than many children around the world, who don't suffer from any disabilitie's. She can see & she can hear. She communicates with her parent's and she doesn't suffer pain. Just because somebody can't move, or because they are more open to infection, does not mean they have poor quality of life. 5 times in 4 years this little girl has needed hospital treatment. Her parent's do the rest & as i said above inless you have actually had a child severly disabled you will never be able to understand. Like the doctor's you see black and white, what is written infront of you. Maybe a day at home with Amber would change your mind on her 'quality of life'.

Never mind all the comments please - This is serious - it is about a life - Amber's life - so please just put your comment in support of Amber. My heart goes out to all the family - keep fighting Amber. I GIVE MY SUPPORT

Haykey - you are making assumptions about my life experience. You have experience that leads you to your opinion and I have experience that leads me to mine. I respect your opinion. I ask the same in return. Thank you.

Lynn - this is an open forum. I wish this child and her parents no harm. I am equally as serious as you are and fully appreciate that this is about a child's life and the family's life. I just happen to have a different opinion. Are you suggesting that the comments of those of us who feel differently should be censored? Or perhaps that we shouldn't bother to express a different point of view?

Most of these comments make me sick, no 1 has the right to pass judgement on whether she should receive treatment or not other than Lesley and Nick. I know this family and i know that if Lesley and Nick didnt think Amber would benefit from treatment then they both wouldnt fight so hard for it, Im just hoping Amber gets the treatment she deserves. Keep fighting Lesley and Nick im behind you 100% xx

as a parent of a special child myself i am horrified to here that doctors want to play god with little ambers life,amber probably like my daughter is a happy muched loved child and the doctors do not see the wonderful quality of life they have every day,they only see the child when ill.if amber was suffering too much she would find a way of letting her mum and dad know,every look and every smile is so precious,keep fighting amber and there are a lot of people behind your mum and dad,love sue and princess scarlett xxx

welshy23 wrote:
Most of these comments make me sick, no 1 has the right to pass judgement on whether she should receive treatment or not other than Lesley and Nick. I know this family and i know that if Lesley and Nick didnt think Amber would benefit from treatment then they both wouldnt fight so hard for it, Im just hoping Amber gets the treatment she deserves. Keep fighting Lesley and Nick im behind you 100% xx

Since this is in the media however, you have to expect that people will express their opinions. No-one can blame this couple for wanting to highlight their plight and gather support from willing quarters but the fact is that they need to work in partnership with healthcare staff and decisions will usually be shared. Where they cannot agree, this course of events is not unusual.

Amber is a beautiful child and what parent wouldn't fight,but, I don't think and I know it isn't as simple as it is printed.The Staff in PICU in UHW are experienced enough to know when medicine is no longer beneficial, Amber is a fighter and if she is meant to stay with us she will despite all the odds Stay strong and fighting Amber as you always have and if you could live on your parents love alone you would out live us all. God Bless you little Angel
keep strong ****

my heart goes out to this family, i had to experience heartache like this before, this little girl DOES DESERVE TO LIVE , she is human, breathes the same air as we all do, and is loved by her family, we WASTE money on keeping foreign people in our country, SO WHY CANT WE SPEND MONEY ON KEEPING LITTLE AMBER HERE TOO ?????

KEEP FIGHTING FOR AMBER , KEEP FIGHTING FOR AMBER, KEEP FIGHTING FOR AMBER .

I wonder if those who say amber should go have children themselves, being a mother myself, i can not imagine what nick and lesley are going through. I give them my total support Amber deserves the right to live as anyone can see they are totally devoted to Amber and rightly so, shes beautiful. My heart goes out to you and i hope you win this fight, i dont know nick, lesley and Amber but i will be thinking about you all. God bless you ****

Where theres life there hope, you keep fighting sweetheart. xxx

I dont know the family personally but I have followed their story, Doctors stated that Amber had a life expectancy of 3-4 years max,as we can see little Amber has already exceeded that (which I think is fantastic)and she has proved what a little fighter she is, even medics in america are surprised at how well she has responded to treatment! What gives the Healthcare the right to refuse her anymore treatment, they were wrong about her living 3-4 years, Amber may have had a few problems & been admitted to hospital on occasions but she has always come through them showing what a fighter she is. Her dad has said "Amber had a strong will to live. "She fights so hard. Who are they to take that away from her? If she chose to give up herself we would respect that." If Amber wants to give up SHE will and no amount of treatment will help her but until then she should be allowed to have whatever help can be offered to her. Nick,Leslie,Amber & family you will know when you cant do no more until then keep fighting you,ve proved them wrong once who's to say you can't do it again! you,ve got alot of support behind you!!so keep strong xxx

welshy23 wrote:
Most of these comments make me sick, no 1 has the right to pass judgement on whether she should receive treatment or not other than Lesley and Nick. I know this family and i know that if Lesley and Nick didnt think Amber would benefit from treatment then they both wouldnt fight so hard for it, Im just hoping Amber gets the treatment she deserves. Keep fighting Lesley and Nick im behind you 100% xx

nobody IS allowed to pass jugements! BUT we are allowed our opinion!

How hard do you think this must be for ambers parents? This is a little girl we are taking about. alot of us are really lucky that we havent had to go thou it,what would you say if it was your child? Who is to say what happens to nick and lesley's child, amber is not ready to give up she is the only one who should deside when its time to go no-one else.Our healthcare doesnt mind blowing money on people who wasnt born here so why cant the health care buy treatment for amber who was born here and parents who pay Tax. ALL give your support im behind you 100% She is no different to anyone else she should get treatment

Everyone is behind you both all the way,hope Amber gets well soon,Luv Amiee XXX

The U.K. is looked up to the world over. I wonder what the world is thinkng now that you have decided to put one of your children aside to die because it cost too much to treat someone who will never grow up to be a contributing member of the world. Shame on You!!

what a lovely child if she were mine i would use the money collected for her to go to america for treatment which was not needed has manchester hospital gave it to her on nhs i would spend every last penny on private care for her which was intended in the first place

To those that agree with this opinions of the Doctors, shame on you. Euthanasia is illegal in this country. This decision will result in someone taking anothers life. Stopping medication that is known to end a life, is a form of Euthanasia. That IS illegal & should be challenged in the courts.