Seriously ill Cwmbran mum makes plea for donors
9:00am Monday 25th February 2013 in Gwent news
A SERIOUSLY ill Cwmbran mum's only wish is to see her children grow up.
But Susan Jones' must receive a double lung transplant as soon as possible to achieve her dream and is urging people to join the organ donors register.
Mother of four, Susan Jones, 45, has been on the waiting list for a double lung transplant for two years after suffering the effects of Cystic Fibrosis, a genetic disorder that affects the respiratory system.
She lost her older brother, Malcolm, to the disease when he was 15 years old, but due to advancements in medication, she has lived a normal life until a year ago, when her lungs started deteriorating.
She said: "I want to encourage people to join the donor's register as for people like me it's just a waiting game, but I haven't got time to wait."
Mrs Jones, from Oakfield, has constant pain in her muscles from coughing and lives on a range of medications including insulin, steroids, and an asthma inhaler.
She said: "I feel like I'm constantly injecting or taking tables. I also have oxygen canisters and a breathing machine so my bedroom looks like a pharmacy."
She worked as a manager for ten years at an amusement arcade in Cwmbran, but had to give that up.
In the past 12 months, her breathing difficulties have become so bad that her childhood friend, Charmaine Carthew, has volunteered to help her with household chores, as well as getting her to appointments in Llandough Hospital, Penarth.
Ms Carthew said: "She has always been an active person, and was too proud to accept help at first.
"We are both practical jokers and have laughed our way through the tough times."
Without a transplant, Mrs Jones is likely to become housebound as she will be oxygen dependent, and have a life expectancy of two years.
But a transplant would dramatically change this, giving her an extra 10 to 15 years.
She said: "If I get new lungs, I can be a proper mum to my children and be able to play with my youngest, six year old Ethan.
"I am also fighting to stay alive for my daughter Chelsea who has been battling against a condition which was causing her to lose her sight."
If the organ becomes available, she will receive a phone call from Harefield Hospital, London, and will either be airlifted or taken by ambulance.
She received a devastating blow in August last year, after missing a phone call from the hospital to say that lungs were available, but she had taken her children out for the day and forgotten her phone.
She said: "I'm not giving up hope. I looking for a new lease of life from a transplant so I can watch my children grow up and hopefully become a granny."
Ms Carthew added: "It's a morbid thought that someone has to die for someone else to live.
"But if more people signed the organ donation register then a tragedy could bring about a life changing event for someone else."