Organ failure

WELL it seems that the Welsh Assembly’s decision to impose on us all in Wales the presumed consent of the organ donation law has been a dismal failure in getting Welsh people to accept it. Their failure comes even after many public consultations where they would not allow opposing views to be aired and even implanted people in the audience to support their dictatorial views.

It now seems that we are to be bombarded from this week with a media campaign that at first will be digital and then in the more traditional media for many months. This clearly shows that the Welsh Assembly have not convinced the Welsh public that this law is good in any way; in fact it is the opposite in that it gives those that are desperately in need of a transplant false hopes of their salvation where it will in fact be more of a benefit to those in other UK countries and Europe.

The Welsh Assembly and its arrogant leadership should realise they don’t own people’s bodies and we will in the future see how many hypocrites are amongst them and those members of their families who opt out of this new law.

Shaun McGuire Mole Close Bettws

Comments (12)

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1:02pm Thu 9 Jan 14

Katie Re-Registered says...

There's actually been two films about this: one original, plus a remake but these were about bodysnatchers who were from a different planet. Oh hang on, wait....!:)
There's actually been two films about this: one original, plus a remake but these were about bodysnatchers who were from a different planet. Oh hang on, wait....!:) Katie Re-Registered
  • Score: 0

1:44pm Thu 9 Jan 14

Bobevans says...

The simple more sensible approach is to have a box on the electorial forms and council tax forms and you have an Organ donation option box which you have to select one of the two options
The simple more sensible approach is to have a box on the electorial forms and council tax forms and you have an Organ donation option box which you have to select one of the two options Bobevans
  • Score: 1

9:13pm Thu 9 Jan 14

Super Shinobi says...

Prediction: England and the rest of the UK will not follow suit, and the Welsh government will have spent obscene amounts of money in it's underestimation of how far communist attitudes towards social issues will be tolerated by the Welsh.

Good letter.
Prediction: England and the rest of the UK will not follow suit, and the Welsh government will have spent obscene amounts of money in it's underestimation of how far communist attitudes towards social issues will be tolerated by the Welsh. Good letter. Super Shinobi
  • Score: 5

8:30am Fri 10 Jan 14

Mervyn James says...

Last year I sponsored a petition to make the welsh assembly accessible for deaf people. The basis of that petition was the fact deaf in Gwent had been left out of the entire consultation process regarding organ donation issue, from start to finish. We weren't consulted, were not informed except by what we read in the media, which looked highly biased to the compulsion vote, and denied communication support to ask our AM's questions. It goes without saying, our GP's ignored us altogether as well. As I am concerned all I want to know is how to oppose the opt in. On the grounds we were left OUT altogether, so I don't feel the assembly decisions apply to my sector at all..
Last year I sponsored a petition to make the welsh assembly accessible for deaf people. The basis of that petition was the fact deaf in Gwent had been left out of the entire consultation process regarding organ donation issue, from start to finish. We weren't consulted, were not informed except by what we read in the media, which looked highly biased to the compulsion vote, and denied communication support to ask our AM's questions. It goes without saying, our GP's ignored us altogether as well. As I am concerned all I want to know is how to oppose the opt in. On the grounds we were left OUT altogether, so I don't feel the assembly decisions apply to my sector at all.. Mervyn James
  • Score: 0

9:07am Fri 10 Jan 14

Bobevans says...

Mervyn James wrote:
Last year I sponsored a petition to make the welsh assembly accessible for deaf people. The basis of that petition was the fact deaf in Gwent had been left out of the entire consultation process regarding organ donation issue, from start to finish. We weren't consulted, were not informed except by what we read in the media, which looked highly biased to the compulsion vote, and denied communication support to ask our AM's questions. It goes without saying, our GP's ignored us altogether as well. As I am concerned all I want to know is how to oppose the opt in. On the grounds we were left OUT altogether, so I don't feel the assembly decisions apply to my sector at all..
The deaf were not left out of it. All the information was available in print and online and from public libraries and TV programs covering it were available with sub titles
[quote][p][bold]Mervyn James[/bold] wrote: Last year I sponsored a petition to make the welsh assembly accessible for deaf people. The basis of that petition was the fact deaf in Gwent had been left out of the entire consultation process regarding organ donation issue, from start to finish. We weren't consulted, were not informed except by what we read in the media, which looked highly biased to the compulsion vote, and denied communication support to ask our AM's questions. It goes without saying, our GP's ignored us altogether as well. As I am concerned all I want to know is how to oppose the opt in. On the grounds we were left OUT altogether, so I don't feel the assembly decisions apply to my sector at all..[/p][/quote]The deaf were not left out of it. All the information was available in print and online and from public libraries and TV programs covering it were available with sub titles Bobevans
  • Score: 0

5:15pm Fri 10 Jan 14

Mervyn James says...

Bobevans wrote:
Mervyn James wrote:
Last year I sponsored a petition to make the welsh assembly accessible for deaf people. The basis of that petition was the fact deaf in Gwent had been left out of the entire consultation process regarding organ donation issue, from start to finish. We weren't consulted, were not informed except by what we read in the media, which looked highly biased to the compulsion vote, and denied communication support to ask our AM's questions. It goes without saying, our GP's ignored us altogether as well. As I am concerned all I want to know is how to oppose the opt in. On the grounds we were left OUT altogether, so I don't feel the assembly decisions apply to my sector at all..
The deaf were not left out of it. All the information was available in print and online and from public libraries and TV programs covering it were available with sub titles
With due respect this displays a limited knowledge of deaf communications. So much assumption was suggested, there is simply no room in the comment box to clarify the issues properly. What I cna say is there is a huge proportion of deaf people who d not use the same grammar, or can follow properly the written examples you stated. 78% of older deaf have no access to a computer, less, want one. Many rely on 'chinese whispers', that is, on other deaf explaining to them via hearsay, and via a signed not written language. Consultation-wise all welsh areas had an open set up for people to use the question-answer options with the health/assembly reps, we were not offered access to follow by the Health Dept, and no politician volunteered to explain things in the format most effective for them to follow. Public libraries ? get real !!!
[quote][p][bold]Bobevans[/bold] wrote: [quote][p][bold]Mervyn James[/bold] wrote: Last year I sponsored a petition to make the welsh assembly accessible for deaf people. The basis of that petition was the fact deaf in Gwent had been left out of the entire consultation process regarding organ donation issue, from start to finish. We weren't consulted, were not informed except by what we read in the media, which looked highly biased to the compulsion vote, and denied communication support to ask our AM's questions. It goes without saying, our GP's ignored us altogether as well. As I am concerned all I want to know is how to oppose the opt in. On the grounds we were left OUT altogether, so I don't feel the assembly decisions apply to my sector at all..[/p][/quote]The deaf were not left out of it. All the information was available in print and online and from public libraries and TV programs covering it were available with sub titles[/p][/quote]With due respect this displays a limited knowledge of deaf communications. So much assumption was suggested, there is simply no room in the comment box to clarify the issues properly. What I cna say is there is a huge proportion of deaf people who d not use the same grammar, or can follow properly the written examples you stated. 78% of older deaf have no access to a computer, less, want one. Many rely on 'chinese whispers', that is, on other deaf explaining to them via hearsay, and via a signed not written language. Consultation-wise all welsh areas had an open set up for people to use the question-answer options with the health/assembly reps, we were not offered access to follow by the Health Dept, and no politician volunteered to explain things in the format most effective for them to follow. Public libraries ? get real !!! Mervyn James
  • Score: -2

1:00am Sat 11 Jan 14

Wendell says...

Mervyn James wrote:
Last year I sponsored a petition to make the welsh assembly accessible for deaf people. The basis of that petition was the fact deaf in Gwent had been left out of the entire consultation process regarding organ donation issue, from start to finish. We weren't consulted, were not informed except by what we read in the media, which looked highly biased to the compulsion vote, and denied communication support to ask our AM's questions. It goes without saying, our GP's ignored us altogether as well. As I am concerned all I want to know is how to oppose the opt in. On the grounds we were left OUT altogether, so I don't feel the assembly decisions apply to my sector at all..
Consultation is really a farce,(after all they never involved the g.p.s in any of the stages of the consultations from 2008 to 2013) and the Government has no intention of creating genuine informed contact with every adult resident in Wales, which is what they said they were going to do We complained to the Speaker of the Assembly; she didn't even bother to reply..If you want to oppose this imposition of compulsory organ removal please contact me on michael.thomas17@bti
nternet.com. We may be able to help each other.
The faults in the previous consultations are an indication that the Government never intended to ask you or listen to your reply; you didn't miss much. But, despite the difficulties in getting access to the published text of replies that were sent to the Consultation we did transcribe them all into a format which is now reasonably easy to read.. If you send me your email I can forward an email copy to you .
You may not have heard it but there was another Consultation , this time on the Code of Practice, that closed on December 23rd.I can clue you up on that too.
The only way to oppose the opt -out now is really to register to opt-out when the register is published .That way you can ensure that your relatives and close friends can have the power to force the NHS to carry out your wishes as to whether you want to donate any organs and which ones.If you do nothing the NHS will have the power to take any or all your organs (up to 16 !) and tissues even if all your family objects.
[quote][p][bold]Mervyn James[/bold] wrote: Last year I sponsored a petition to make the welsh assembly accessible for deaf people. The basis of that petition was the fact deaf in Gwent had been left out of the entire consultation process regarding organ donation issue, from start to finish. We weren't consulted, were not informed except by what we read in the media, which looked highly biased to the compulsion vote, and denied communication support to ask our AM's questions. It goes without saying, our GP's ignored us altogether as well. As I am concerned all I want to know is how to oppose the opt in. On the grounds we were left OUT altogether, so I don't feel the assembly decisions apply to my sector at all..[/p][/quote]Consultation is really a farce,(after all they never involved the g.p.s in any of the stages of the consultations from 2008 to 2013) and the Government has no intention of creating genuine informed contact with every adult resident in Wales, which is what they said they were going to do We complained to the Speaker of the Assembly; she didn't even bother to reply..If you want to oppose this imposition of compulsory organ removal please contact me on michael.thomas17@bti nternet.com. We may be able to help each other. The faults in the previous consultations are an indication that the Government never intended to ask you or listen to your reply; you didn't miss much. But, despite the difficulties in getting access to the published text of replies that were sent to the Consultation we did transcribe them all into a format which is now reasonably easy to read.. If you send me your email I can forward an email copy to you . You may not have heard it but there was another Consultation , this time on the Code of Practice, that closed on December 23rd.I can clue you up on that too. The only way to oppose the opt -out now is really to register to opt-out when the register is published .That way you can ensure that your relatives and close friends can have the power to force the NHS to carry out your wishes as to whether you want to donate any organs and which ones.If you do nothing the NHS will have the power to take any or all your organs (up to 16 !) and tissues even if all your family objects. Wendell
  • Score: 1

12:02pm Sat 11 Jan 14

Mervyn James says...

The access wasn't provided by the Assembly or politicians that advocated opt in consent, and then went to set up a law. Simply people publishing things online won't do, formats have to be appropriate to the disability, deaf people are not going to search online for info, they expect to be told when consultations take place, and empowered to follow, the same as anyone else...

I've seen stuff on youtube,but we cannot hear what they are saying, and there are no captions or anything. Anyone who has ever used google text will now it only makes sense to dyslexic Croatians..... I appreciate further info, but this is telling us far too late, they have MADE the decisions without us ? My own GP said "You cannot now opt out.. opt in, is the law." A staggering faux pas and quite wrong too ! If deaf people are told this, what are they to think ? We are mostly old school and respect what our GP's tell us. Years ago I went to mt GP insisting he put on my record NO to removal of any organ, he put it on my medical record, now he says it has been overruled, how are we to counter the ignorance of our own Dr's and the 'Burke and Hare' fraternity at my local hospital ?
The access wasn't provided by the Assembly or politicians that advocated opt in consent, and then went to set up a law. Simply people publishing things online won't do, formats have to be appropriate to the disability, deaf people are not going to search online for info, they expect to be told when consultations take place, and empowered to follow, the same as anyone else... I've seen stuff on youtube,but we cannot hear what they are saying, and there are no captions or anything. Anyone who has ever used google text will now it only makes sense to dyslexic Croatians..... I appreciate further info, but this is telling us far too late, they have MADE the decisions without us ? My own GP said "You cannot now opt out.. opt in, is the law." A staggering faux pas and quite wrong too ! If deaf people are told this, what are they to think ? We are mostly old school and respect what our GP's tell us. Years ago I went to mt GP insisting he put on my record NO to removal of any organ, he put it on my medical record, now he says it has been overruled, how are we to counter the ignorance of our own Dr's and the 'Burke and Hare' fraternity at my local hospital ? Mervyn James
  • Score: 0

12:21pm Sat 11 Jan 14

Mervyn James says...

Your email doesn't compute sadly.
Your email doesn't compute sadly. Mervyn James
  • Score: 0

10:00pm Sun 12 Jan 14

Spinflight says...

Is anyone really surprised that our elected scumbags from the old failed parties don't give a hoot what we think?

chairman@ukipnewport
.com
Is anyone really surprised that our elected scumbags from the old failed parties don't give a hoot what we think? chairman@ukipnewport .com Spinflight
  • Score: 0

6:58pm Mon 13 Jan 14

Bobevans says...

Spinflight wrote:
Is anyone really surprised that our elected scumbags from the old failed parties don't give a hoot what we think?

chairman@ukipnewport

.com
Good luck in the Manchester Wythanshawe bye election. Will it be the UK's first UKIP MP?
[quote][p][bold]Spinflight[/bold] wrote: Is anyone really surprised that our elected scumbags from the old failed parties don't give a hoot what we think? chairman@ukipnewport .com[/p][/quote]Good luck in the Manchester Wythanshawe bye election. Will it be the UK's first UKIP MP? Bobevans
  • Score: 0

8:24am Thu 16 Jan 14

Mervyn James says...

Vote UKIP you vote Tory, or I would be supporting them. They will back Tory policies if Cameron goes, this tells us we will see no real changes. We must keep Tories out at all costs. The ;promises we get about a referendum etc seem to be the old story, sometime never, and if they get back in. In - or out, its the only vote that matters, the majority want out, so why are we faffing about ? Watching the ridiculous European Parliament with Farage there asking real questions, shows why we need to get the hell out of Europe as quick as we can, ridiculous vested interested of an coalition of countries who have lost the plot big time. The smirking responses from European non-entities making a killing turning up to talk rubbish was self evident, as was the fact they are sending us all the people they don't want and cannot look after.. If they looked after their own there would be no mass migrations elsewhere.
Vote UKIP you vote Tory, or I would be supporting them. They will back Tory policies if Cameron goes, this tells us we will see no real changes. We must keep Tories out at all costs. The ;promises we get about a referendum etc seem to be the old story, sometime never, and if they get back in. In - or out, its the only vote that matters, the majority want out, so why are we faffing about ? Watching the ridiculous European Parliament with Farage there asking real questions, shows why we need to get the hell out of Europe as quick as we can, ridiculous vested interested of an coalition of countries who have lost the plot big time. The smirking responses from European non-entities making a killing turning up to talk rubbish was self evident, as was the fact they are sending us all the people they don't want and cannot look after.. If they looked after their own there would be no mass migrations elsewhere. Mervyn James
  • Score: 0

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